Why you should commission DAFNE
DAFNE: The facts
Why should you commission structured patient education for your type 1 diabetes patients?
Approximately 600 people per 100,000 in the UK are estimated to have type 1 diabetes. The estimated NHS spend on type 1 diabetes was £1.8bn in 2012. Around 80% of this spend was due to avoidable complications of the disease.
Diabetes is the most common cause of end-stage kidney disease and the most common cause of preventable blindness in the UK. The rate of depression is twice as high in people with diabetes.
Commissioning DAFNE is proven to deliver:
- Cost savings of £93,133 per 100,000 population per year
What is DAFNE?
DAFNE (dose adjustment for normal eating) is the leading structured patient education programme for adults with type I diabetes. Provided by a not-for-profit NHS supported consortium, it enables patients to self-manage their condition through a skills-based education programme.
DAFNE can be delivered in a range of formats, there are different courses for those using insulin pens or pumps for insulin delivery. The course can be delivered face to face in an outpatient setting, or remotely involving online learning and virtual group sessions. DAFNE courses are delivered by diabetes specialist dietitians and nurses that have been trained as DAFNE educators, supported by a DAFNE trained doctor.
DAFNE course | Pen or Pump | Format | Further detail |
Remote DAFNE | Pen(MDI) | Fully remote
Online with remote support |
Online learning
(3-7 hours per week for 5 weeks) Weekly remote support calls (2 ½ -3 ½ hours per week) |
Blended
Online with face to face support |
Online learning
(3-7 hours per week for 5 weeks) Weekly face to face support sessions (2 ½ -3 ½ hours per week) |
||
Remote Pump DAFNE | Pump | Fully remote
Online with remote support |
Online learning
(4-6 hours per week for 5 weeks) Weekly remote support calls (3 ½ -4 hours per week) |
Blended
Online with face to face support |
Online learning
(4-6 hours per week for 5 weeks) Weekly face to face support sessions (3 ½ -4 hours per week) |
||
DAFNE | Pen
(MDI) |
Face to face | Face to Face learning,
5 consecutive days Monday – Friday (usually 9am – 5pm) |
5x1 DAFNE | Pen
(MDI) |
Face to face | Face to Face learning
1 day per week for 5 weeks (usually 9am – 5pm) |
Pump DAFNE | Pump | Face to face | Currently in being updated
Face to Face learning, 5 consecutive days Monday – Friday (usually 9am – 5pm) |
Evidence
People applying DAFNE principles learn to stabilise their blood glucose which reduces the risk of complications, improves quality of life for them and their families and reduces NHS costs.
Immediate savings arise from lower insulin doses; recurrent cost savings accrue from reduced ambulance callouts, reduced A&E attendances and reduced admissions; long term savings accrue due to fewer costly diabetes complications
The reliability, credibility, impact and effectiveness of DAFNE can be demonstrated by over 25 years of peer-reviewed, published research in both the UK and Europe. Details of the published research can be found here
The patient perspective
“My bottom line in life is to function and DAFNE gives me that ability. For me, it is not a diabetic treatment, it is my life. I have control. Together DAFNE and I are delivering the best results in diabetes care I’ve experienced in my 25 years”. Jenny Mills-Thomas, Cambridgeshire
How do we deliver DAFNE ?
Patients are introduced to DAFNE through one of the 7 course formats delivered by your existing staff.
The national DAFNE programme ‘trains the trainers’, all of our healthcare professional training courses are provided remotely and are free. We also provide ongoing CPD, audit of outcomes and quality assurance. There is an annual contribution to support the central DAFNE office services. The cost to deliver DAFNE per patient is lower if more courses are delivered.
Non-recurrent set-up costs for face to face course formats is approximately £450 for teaching aids and associated reusable resources. Cost per patient above staff time is approximately £70 per patient if 8 patients are trained each month..
If you have any questions please contact dafne@nhct.nhs.uk. Alternatively, you can review all of the research mentioned above plus more professional and user reviews on this site
How a service began delivering DAFNE
Specialist diabetes services are not configured to support the delivery of group programmes within their existing traditional format of 1:1 formal clinics and informal reviews. Consequently, many teams struggle to introduce high-quality structured education as a core component of their type 1 diabetes service. There is a widely held belief that such education cannot be delivered without significant additional specialised staff resource.
Service redesign is the best way to support the delivery of DAFNE within existing diabetes teams. Healthcare professionals find themselves delivering the same 1:1 intervention repeatedly and often to the same individuals. Adult education theory helps us understand why the 1:1 method of information sharing is often ineffective. Delivering DAFNE to a group instead is time-efficient and effective.
Below, consultant physician Helen Hopkinson, describes the evolution of a cross-site structured type 1 diabetes education programme (DAFNE) within Greater Glasgow and Clyde (GGC) without any increase in specialist diabetes staff resource.
In 2007 I received funding from the Scottish Diabetes Group (SDG) for DAFNE training for myself (a consultant physician), a dietitian and a diabetes specialist nurse, as well as two years of the annual DAFNE central contribution. Our DAFNE team of two reorganised our job plans, proposing that much of the 1:1 informal patient review that forms the backbone of traditional diabetes follow-up might not be an effective use of time. Anecdotally this was effective in all cases by reducing episodes of severe hypoglycaemia, DKA admissions and in most cases by a reduction in HbA1c, thereby reducing patients’ need for further 1:1 attention. DAFNE has worked most effectively for us by empowering the patients who have completed a DAFNE course (known as DAFNE graduates) to solve their own problems and encouraging the educators to facilitate self-management rather than indulging in parental instruction.
By 2009 I was receiving requests from colleagues and directly from patients at other hospital services who were desperate to get onto a DAFNE course. We had a waiting list of 80 people from my own hospital and it was one of the harder decisions I made not to agree to take on patients from other hospitals. Two consultant colleagues from other GGC hospitals decided to set up DAFNE teams, and with the support of the Diabetes MCN we established a DAFNE subgroup, and we became a single GGC DAFNE centre.
Without additional manpower resource, job redesign has enabled a sustainable programme of DAFNE course delivery. Now all seven acute sites have DAFNE teams delivering courses within GGC. We are united by the life-changing experience that is a person with type 1 diabetes telling you that ‘You have given me my life back’.
DAFNE is not simply a gold-standard package available to a proportion of our adults with type 1 diabetes; it offers a philosophy and a set of principles which provide a core of consistency underpinning everything we do from diagnosis in type 1 diabetes. DAFNE brings clarity to the type 1 diabetes treatment pathway and patient journey because all team members work to the same targets using the same language, and embrace the same self-management philosophy.
Audit outcomes
All DAFNE centres collect and enter biomedical data for course participants at baseline (pre-course) and 12-month post course, onto the national Clinical and Audit database. We conduct an annual audit of outcome data to demonstrate the ongoing efficacy of the DAFNE courses.
Dr Jackie Elliott, Chair of the DAFNE executive board, presents data from the 2020 annual audit, this included from participants from centres across the DAFNE consortium who completing a course in 2018, with 12-month data collection taking place in 2019.